Join the The Cure MAPT FTD Digital Cabinet Database

Families affected by MAPT Frontotemporal Dementia are helping researchers better understand the disease and accelerate the development of treatments. By joining the database, you can contribute valuable information that may help move research forward.

How Participation Helps

• Share your experience

  Answer surveys about symptoms, diagnosis, and life with MAPT FTD to help researchers better understand the condition.

• Support research

  Your information helps scientists identify patterns, improve understanding of disease progression, and design better studies.

• Learn about opportunities

  You may be informed about research studies or clinical trials that could be relevant to you or your family.

• Contribute to a global effort

  Families from around the world are working together to accelerate progress toward treatments and ultimately a cure.

Your participation is voluntary

Joining the database is completely voluntary. You can choose what information to share, update your responses over time, and decide whether to participate in optional research opportunities.

Protecting your privacy is important. Information shared through the database is stored securely and used only in accordance with the permissions you provide.